Source Book in Bioethics: A Documentary HistoryAlbert R. Jonsen, Robert M. Veatch, LeRoy Walters Georgetown University Press, 7. sep. 1999 - 640 sider Government agencies and commissions, courts, and legislatures have during the past several decades produced reports, rendered decisions, and passed laws that have both defined the fundamental issues in the field of bioethics and established ways of managing them in our society. Providing a history of these key bioethical decisions, this Source Book in Bioethics is the first and only comprehensive collection of the critical public documents in biomedical ethics, including many hard-to-find or out-of-print materials. Covering the period from 1947 to 1995, this volume brings together core legislative documents, court briefs, and reports by professional organizations, public bodies, and governments around the world. Sections on human experimentation, care of the terminally ill, genetics, human reproduction, and emerging areas in bioethics include such pivotal works as "The Nuremberg Code," "The Tuskegee Report," and "In the Matter of Baby M," as well less readily available documents as "The Declaration of Inuyama," the Council for International Organizations of Medical Sciences statement on genetic engineering, and "The Warnock Committee Report" on reproductive technologies from the United Kingdom. Three eminent scholars in the field provide brief introductions to each document explaining the significance of these classic sources. This historical volume will be a standard text for courses in bioethics, health policy, and death and dying, and a primary reference for anyone interested in this increasingly relevant field. |
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... individuals who went into this camp voluntarily .... COMMISSIONER : We were told by a witness yesterday that , in his ... individual himself , with a full knowledge of the circumstances . Under these circum- stances , any man , I think ...
... individual are outweighed by the potential benefits to him or by the importance of the knowledge to be gained , and that informed consent is to be obtained by methods that are adequate and appropriate . Reprinted from The Institutional ...
... individual who may be at risk as a consequence of participation as a subject in research , development , demonstration , or other activities supported by DHEW funds . This may include patients ; outpatients ; donors of or- gans ...
... individual patient or client and that have a reasonable expectation of success . The purpose of medical or behav- ioral practice is to provide diagnosis , preventive treatment or therapy to particular individuals.2 By contrast , the ...
... individual investigators and society at large , because they extend both to particular research projects and to the entire enterprise of research . In the case of particular projects , investigators and members of their institutions are ...
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11 | |
13 | |
16 | |
22 | |
29 | |
40 | |
54 | |
THE SOCIAL AND ETHICAL ISSUES OF GENETIC ENGINEERING WITH HUMAN BEINGS | 299 |
NIH POINTS TO CONSIDER FOR GENE THERAPY RESEARCHERS | 314 |
INFORMATION FOR THE GENERAL PUBLIC | 317 |
Recommendations of European Medical Research Councils | 319 |
THE DECLARATION OF INUYAMA | 322 |
MAPPING AND SEQUENCING THE HUMAN GENOME | 324 |
THE GENOME PROJECTSHOW BIG HOW FAST? | 327 |
ETHICAL ISSUES ARISING FROM HUMAN REPRODUCTIVE TECHNOLOGIES AND ARRANGEMENTS | 335 |
62 | |
76 | |
88 | |
103 | |
THE ETHICS OF DEATH AND DYING | 111 |
CHANGING ATTITUDES TOWARD DEATH AND MEDICINE | 113 |
MEDICAL LEGAL AND ETHICAL ISSUES IN THE DEFINITION OF DEATH | 118 |
THE SUPREME COURT STATE OF NEW JERSEY 1976 | 143 |
STATE OF CALIFORNIA 1976 REVISED THROUGH 1992 | 149 |
SUPERINTENDENT OF BELCHERTOWN STATE SCHOOL V SAIKEWICZ | 153 |
ETHICAL MEDICAL AND LEGAL ISSUES IN TREATMENT DECISIONS | 159 |
THE SUPREME COURT STATE OF NEW JERSEY 1985 | 220 |
110 SCT 2841 1990 | 229 |
FINAL RULE | 238 |
IN THE MATTER OF BABY K 1993 | 247 |
ETHICAL ISSUES IN HUMAN GENETICS | 253 |
ISSUES IN GENETICS | 255 |
PROGRAMS PRINCIPLES AND RESEARCH | 260 |
SCREENING AND COUNSELING FOR GENETIC CONDITIONS | 263 |
IMPLICATIONS FOR HEALTH AND SOCIAL POLICY | 288 |
ON GENETIC ENGINEERING | 296 |
INTRODUCTION | 337 |
HEW SUPPORT OF RESEARCH INVOLVING IN VITRO FERTILIZATION AND EMBRYO TRANSFER | 341 |
COMMITTEE TO CONSIDER THE SOCIAL ETHICAL AND LEGAL ISSUES ARISING FROM IN VITRO FERTILIZATIONFIRST INTERIM RE... | 343 |
THE WARNOCK COMMITTEE LONDON | 347 |
AMERICAN FERTILITY SOCIETY 1986 | 358 |
INSTRUCTION ON RESPECT FOR HUMAN LIFE BY THE CONGREGATION FOR THE DOCTRINE OF THE FAITH 1987 | 369 |
IN THE MATTER OF BABY M NEW JERSEY SUPREME COURT | 376 |
MEDICAL AND SOCIAL CHOICESUS CONGRESS OFFICE OF TECHNOLOGY ASSESSMENT 1988 | 386 |
THE GLOVER REPORT TO THE EUROPEAN COMMISSION 1989 | 395 |
AMERICAN COLLEGE OF OBSTETRICIANS AND GYNECOLOGISTS 1990 | 398 |
FINAL REPORT OF THE ROYAL COMMISSION ON NEW REPRODUCTIVE TECHNOLOGIES 1993 | 403 |
ETHICAL ISSUES IN THE CHANGING HEALTH CARE SYSTEM | 407 |
INTRODUCTION | 409 |
THE UNIFORM ANATOMICAL GIFT ACT 1968 | 412 |
ISSUES AND RECOMMENDATIONS 1986 | 418 |
CANTERBURY V SPENCE 464 F 2D 772 1972 | 448 |
THE ETHICAL AND LEGAL IMPLICATIONS OF INFORMED CONSENT IN THE PATIENTPRACTITIONER RELATIONSHIP | 463 |
TARASOFF V REGENTS OF UNIVERSITY OF CALIFORNIA SUPREME COURT OF CALIFORNIA 1974 | 494 |
INDEX | 505 |
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